Op 4 augustus is de in het BMJ Neurology (in het Engels) een beschrijving van de Nederlandse MS studie verschenen. Hieronder staan de conclusies. Klik op de tekstvoor het hele artikel.

Peter Joseph Jongen^12*, Marco Heerings³⁴, Wim A. Lemmens⁵, Rogier Donders⁵, Anneke van der Zande⁴, Esther van Noort⁶ and Anton Kool⁶

Conclusions

The Dutch Multiple Sclerosis Study is a prospective, web-based, patient-centred, interactive, study of long-term disabilities, disabilities perception and HRQoL in patients with MS in the Netherlands. The innovative study design is characterized by online patient-driven inclusion; online data acquisition; the use of PROs; the optional frequent completion of short questionnaires; the interactive use of personal study data by patients and authorized health care professionals for self-monitoring, self-management and multidisciplinary care; the expected representativeness of the study sample; and the long-term time horizon. The study will provide valuable reference data on long-term disabilities, disabilities perceptions and HRQoL in MS patients in The Netherlands.